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2015 Featured Talks » ePatients on the Front Lines: Precision Medicine, the FDA, and Me



ePatients on the Front Lines: Precision Medicine, the FDA, and Me

Janet Freeman-Daily, MS, ENG
Patient Advocacy


Part One


Part Two




Janet Freeman-Daily, MS, ENG
Lung Cancer Patient and Advocate

Janet Freeman-Daily, MS, ENG, is a metastatic lung cancer patient who was diagnosed with stage 3A NSCLC in May 2011. After two chemotherapy regimes, two radiation protocols, and two recurrences, she used information obtained in online forums to get her tumor tissue tested for newer molecular markers and find a clinical trial. She has had No Evidence of Disease since January 2013 thanks to crizotinib therapy for ROS1 NSCLC. After applying her MIT and Caltech engineering degrees to a career in aerospace systems engineering for two decades, she now is an active advocate for lung cancer patients, employing her writing and speaking skills and science background to translate the experience and science of lung cancer treatment and research into language other patients can understand. Her advocacy accomplishments include an award-winning lung cancer blog at grayconnections.net, contributing blogger for CURE Today magazine, co-moderator for Lung Cancer Social Media (#LCSM) Chat on Twitter, Member of the Addario Patient Advisory Board for the Addario Lung Cancer Foundation, Consumer Reviewer for the DoD’s Lung Cancer Research Program (LCRP), Patient Advocate on the Lung Cancer SPORE at University of Colorado Hospital, and ePatient Scholar Presenter at the 2014 Stanford Medicine X Conference.